It has been two years since Tom Holland and Robert Downey Jr. worked together on Avengers: Endgame, and while there is no chance of them appearing together as their respective Avengers again in the MCU, the pair recently teamed up for the Venture into Cures Research Fundraiser event for Epidermolysis Bullosa (EB). While hosting the opening segment, Holland stumbled his way around the pronunciation of the life-threatening genetic disorder and then professed his gratitude at being picked to host over his fellow superheroes, name dropping Captain America and Thor, but he then is stopped in mid-flow as his phone begins to vibrate and he has to excuse himself to take the call – which turns out to be none other than RDJ himself.
After a jolly greeting, the pair share a bit of banter, with Robert Downey Jr. joshing Holland over the fact that he was asked to host first but even though he wasn’t doing anything he turned it down and suggested they get the youngster to do it instead. After proving that he knows quite a bit about the disorder, the call is ended and Holland is left to continue on with his introduction, in which he urges everyone to watch the real life heroes living with EB and help to progress a treatment for the disorder.
“I have never seen resilience and bravery like I’ve seen in the stories of those living with EB” Tom Holland said. “I play a superhero in movies, but these kids and families are the true superheroes – they face impossible hardships every day, yet they keep pushing forward. We owe it to them to continue the race toward finding a cure for EB and other rare diseases.”
“Now is a critical moment in time when life-saving EB therapies are becoming not an ‘if’, but a ‘when’,” Michael Hund, CEO of EBRP added. “With the current momentum, adequate financial resources, and our innovative venture philanthropy model, we are putting speed into delivering treatments and cures for those living with EB. In the process, we are pioneering a model to accelerate treatments and cures for EB and the 7,000 rare diseases that affect 10 percent of the global population.”
You can see the full video of Holland and Downey Jr.’s delightful reunion courtesy of the Tom Holland Archive on YouTube below.
When it comes to EB itself, the disorder affects around half a million people worldwide. Those suffering the genetic disorder are referred to as Butterfly Children because the wings of a butterfly is as fragile as their skin, and children suffering from it are usually found in immense pain, suffer open wounds both internally and externally, and endure a daily bandaging process just to live their lives. There is currently no cure and no treatment for the condition, which is why the fundraiser is such an important thing for those who are living from the disorder and others who will do so in the future.
If you are looking to bring attention to the fundraising appeal and the condition, there can be no more high profile spokesperson to have on board than Tom Holland right at this moment thanks to the imminent release of Spider-Man: No Way Home in cinema on December 17th, and if he wants to bring his good friend Robert Downey Jr. to the party then who are we to stop him.
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